Q. When have you used the In-Exsufflator for the first time?
PEOPLE STORIES
In-Exsufflator: this assistive device is very helpful for people with neuromuscular disorders. The experience of Luca. (Luca is the first person in the Region of Lombardia, Italia, to use the device)
Q. When have you used the In-Exsufflator for the first time?
In September of the last year (1999) after a respiratory insufficiency failure due to mucus and while I was in an expert Centre for a check up. I had a bad bronchipneumonia in March that never resolved and that left me with stacking secretions in the windpipe. This condition was uncomfortable and I suffered from episodes of inhalation. I was scared when everything got wrong: pressure, oxygen saturation, tachycardia, impossibility to breathe.
Q. What is the sensation in using the device?
When I started using the In-Exsufflator I had, for few seconds, the bad impression to go out of air when the device makes "expirations". But since I usually get used to new situations quickly, this discomfort was soon over. When the mucus comes out I immediately feel better and I get over things.
Q. Is it troublesome?
No, if you get used to it you accept it and, believe me, I do need it!
Q. How long did it take to your mom to learn how to use the In-Exsufflator?
Mom has learnt to use the device in a very short time after the training received in the expert Centre. My brother in law has learnt, too, but I always call mom.
Q. Do you use the ventilator at night?
I have been using the ventilator for four years and my nose has something to tell about it! I remember that before starting ventilation I felt always tired. Now it is much better.
Q. Is it true that you could not stay without the In-Exsufflator?
No, it isn't. For two weeks after the first try I have been using the device regularly twice a day for half an hour as I have been told by the doctor. And I can say that the first days have been hard but afterwards much depends on the mucus you have. This week, for instance, I have used it only when needed and especially in the morning because I felt obstruction in the airways. As mucus goes, I become "free".
I personally feel safe having the device at home and up to me all persons like me should have one of his own.
April 2000
